Wynter was trying to sit up in the above video- so day to watch. Today they took her catheter out and she has peed in the potty and in her diaper. They still wont give her anything to eat or drink- because she hasnt pooped- when she tries to push- she throws up- I told them it is NOT bc she had ice chips- but bc she is pushing so hard to go to make a BM and that she needs a suppository since she cant have her miralax/ or drink/ and still hasn't been able to move! PT was supposed to come today- but I guess it got lost in translations somewhere with it being the weekend- I am repositioning her and I did get to hold her twice- and she really seemed to enjoy getting off her back. Keep praying for a BM, and no more throwing up- so they will let the child get up ans start moving and balancing- which is what she needs- to give them what they want! Praying for an uneventful night- she is still on oxygen, as the medications drop her O2 too low (too sedated).
Oh that is so hard to watch...but she is doing SO GREAT! What a strong and determined girl she is...always has been and always will be. So proud of her!! Give her my love! KEEP IT UP WYNTER!!! YOU CAN DO IT!
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sheesh, she cannot be the first child there to ever have a history of constipation! Alright, prayer for a BM as well as an uneventful night.
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