Flying to Philly

Okay, we are on the plane to Philly for another neurosurgeon appointment in the morning. We land around midnight, then take a cab to the hotel, check in at the hotel, get alittle sleep before catching another cab to get to the hospital by 7 am....Wynter did okay on the first flight (other than a pee pee accident AS we were boarding). She does keep telling me that her ears hurt...and now she keeps acting like she wants to throw up.....I'm praying we can avoid that! thank you all for your continued prayers....also praying they have my stroller when we land.

Wynter had her MRI. Unfortunately the Neurosurgeon here changed his "order" at the last minute and removed the flexion/ extension images, he is just to unfamiliar with this issue and didn't feel comfortable extending her neck....I wanted to say "DUH, thats why we need those images" But I didn't let me flesh get the better of me, (THANK YOU LORD)....I tried to get him to change it, but no real success. So, I will take the XRAY and the MRI and little miss Wytner to Philadelphia on Monday to see Dr. Samdani and will return with a GAME PLAN on Wednesday. Thank you all for your continued prayers. I will continue to post here to keep you all in the loop!

OKAY! First hurdle, CHECK. She bypassed the 4 day application wait. I just got a phone call, SHE IS IN! We got into Shriners Children's hospital in Philadelphia! They will cover the medical part of it all, WE JUST NEED TO FIGURE OUT AIR FAIR AND WHERE TO STAY ECT. They want to see her ASAP, SO WE NEED TICKETS AND MONEY TO STAY in Philly fly in on a monday, fly home late tuesday or wednesday morning for the EVEAL. and fit for a cervical solar....they we wait to see when surgery will be. I CAN TELL SHE WILL BE IN GOOD HANDS THERE, and THIS IS WHERE SHE NEEDS TO BE!!!GOD, please bring in the finances now!

Well, this is the beginning of our scariest journey yet with our sweet Wynter. We found out last week that she has a very dangerous instability between her skull and her c1 called AOD. They pediatric neurosurgeon at Dell's Children's hospital said that a fall or wrong extension of her neck could paralyze her or worse. A car accident could be fatal. We have to get a MRI to be able to develop a surgical plan, but the MRI itself poses the same risks. She will also need a sleep study down before this unusual surgery. So please be praying for her on Monday the 16th. The only 2 cases that I have heard of like this were both performed in Philadelphia. There are about 1000 plus details that have to be worked out...so we covet your prayers and support as we figure all of this out. I will keep you all posted the best I can via this blog as I get new information. Right now, we are trying to get all the testing done and figure out where we will be going for surgery and how to find the help we need during that month....and then the 6 months following while she will be in a halo with 8 pins in her head attached to a body cast that will not be removable- all to give the fusion the best possible chance of success. .... I will keep you posted. Thanks for your prayers.

Christmas 2011

Well, I am join to have to get a lot better at this blogging thing. We finally made it up to Illinois to see our family. We had a great time. Wynter and Zach loved the snow, and Michael tolerated it. But we really enjoyed getting to spend time with my family. Its been about three years since we have gotten to see them. This picture is me, Wynter, and my sweet italian grandmother who I love dearly! We miss you already!

First visit from the tooth fairey!

Its been a long summer & there is a lot to catch up on, but first is the excitement over the loss of Wytner's first (2) teeth! It was early morning on a Tuesday and I was rushing -trying to get the boys on the bus so she & I could get ready for therapy. I sat down to read her a book & realized that she was missing her front bottom tooth, the the second bottom tooth was barely hanging on. I freaked out for a second, checked her for signs of trauma -thinking she fell or hit her face...but saw nothing! I threw together a "to go" bag and made an emergency stop at her dentist on the way to therapy. She screamed as 3 of us held her down for x-rays (she has a GREAT dentist, we love her!) In the end...it was just TIME! Her teeth are all healthy, no trauma...she is just growing up (at 4 yrs old). We did hold her down & pull the other tooth that was hanging so she didnt swallow or choke on it (she did NOT like that)...The rest of the day we talked about it & the tooth fairey. Way to go Wynter!

After surgery

Wytner had surgery on her left thumb last week and we had to make some adjustments today to the open wound that surgery left behind. Thank you all for your prayers as she underwent 2 sedations and the surgery. The Lord answered our prayers and she made it through very sucessfully. The HARD part has been all of the side affects. She had a VERY acute reaction to the first pain medication: massive hyperness, out of controll behavior- even violent at times- NO SLEEPING, massive constipation to name a few... She also has had to keep one sometimes both arms in splints to keep them straight so that she couldnt get her hands to her mouth- or to each other... By the 4th night mommy was able to get about 6 hours of MUCH NEEDED sleep. She is sleeping better, and seens to be tollerating the braces and pain pretty well...but we are still having constipation problems and mild behavior issues right now...Hopefully in the next few days we will begin to be on the upside of all this. It has been a LONG 15 months of dealing with this thumb. We will be greatful to have this issue behind us!
But God is good and His grace and mercies are made new to us each day. In every season He continues to prove Himself faithful, and it is to God we will cling!