Well, this is the beginning of our scariest journey yet with our sweet Wynter. We found out last week that she has a very dangerous instability between her skull and her c1 called AOD. They pediatric neurosurgeon at Dell's Children's hospital said that a fall or wrong extension of her neck could paralyze her or worse. A car accident could be fatal. We have to get a MRI to be able to develop a surgical plan, but the MRI itself poses the same risks. She will also need a sleep study down before this unusual surgery. So please be praying for her on Monday the 16th. The only 2 cases that I have heard of like this were both performed in Philadelphia. There are about 1000 plus details that have to be worked out...so we covet your prayers and support as we figure all of this out. I will keep you all posted the best I can via this blog as I get new information. Right now, we are trying to get all the testing done and figure out where we will be going for surgery and how to find the help we need during that month....and then the 6 months following while she will be in a halo with 8 pins in her head attached to a body cast that will not be removable- all to give the fusion the best possible chance of success. .... I will keep you posted. Thanks for your prayers.
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