November 2008

19 months: We were very happy to met with DR. Lawrence Leitchman. He had studied Down Syndrome for over 25 years, is the creator of the Nurtrivene supplements that Wynter is on and basically just has a lot of overall knowledge of the health issues with our kids that have DS. I am working on trying to get a website up and running to make more available to other families all of the valuable different information that I have learned that had dramatically effected Wynter. ECI ( early childhood intervention) did her assessment recently and each evaluated area was aged differently, but her scores all fell between 16 months and 20 months. Her gross motor skill was the lowest due to her very low muscle tone; they averaged her at 18 months. She scored the highest in social areas :) no surprise there! Her PT also suggested a “Spio”, so she will be wearing that most days to help her with body awareness and trunk support. (See Spoi under the therapy button on the website).

We also had to make an appointment with a neurologist for Wynter. The back of her head seems to be indenting vertically alone the back of her head. But after a Ct/MRI, there is nothing “wrong” and no explanation. So we are hoping that more cranial sacral work and GROWING will help. He said to come back if anything changes.


17 months old: correct crawling, FINALLY