I just spoke with Wynter's neurosurgeon, Dr. Samdani about Wynter's 12 week X-rays. He reports that the hardware looks like everything is still in place and that there is starting to be some good bone healing around the screws. He also said that he would like her to stay in the body cervical collar for another month, and then we can graduate down to just the neck cervical collar. She will then wear that collar until September 8th ( 6 months post op) and then we can slowly wean her out of it as her neck muscles strengthen. Because her neck muscles has been stabilized for so long, They will be like a newborn again, very weak and unstable. So we will have to be strengthening every day. So all in all- VERY GOOD NEWS! His only suggestion was to try and avoid her "tripping over the bathroom stool-doing a foot over head cartwheel- landing on her head in the tub" move as much as possible LOL . (That daredevil move was during a midnight independent trip to the potty....I heard a noise and turned on the light in time to see what I just described). Ugh, this kid!!!
Wynter and I will have to fly back up to Philadelphia in August for Dr. Samdani to repeat X-rays and reevaluate her before school starts. She will, unfortunately, have to start school with the collar on, so we will need some very specific notes for that Im sure. :(
The only other news, is that on Tuesday of this week, Wynter woke up at 4:30 am and was acting very strange, and as I took her to the bathroom I noticed that she looked "grey" and her lips were blue (she sleeps with a CPAP, so that didnt make sense). Her whole body shook with every exhale, and the only thing she said was "tummy ouch". We went to the E.R and after a traumatic morning of being held down and having needles stuck in her all over, CT scans etc....All we could find was that her white blood cell count was 20,000- which is very high for ANYONE! While there, she developed a 103 fever that did not decrease with medication, but then resolved on its own at 2pm. She has had NO symptoms of ANYTHING being wrong since 2pm that day. VERY STRANGE. Next week we will follow up with more lab work to re-check her white blood cell count and go from there.
Thank you all again for your prayers and support. We are hoping for a fun, restful and uneventful summer!!! So, if we don't post for a while, know that no news is good news!!!
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