OUT of surgery and stable: DAY ONE

DAY ONE: THANK you all for your prayers and words today- it was a long day for sure! God gave Wynter a sweet gift of snow this morning before going down to pre-op. She did great through all the "talk"- then screamed as we put her under around 7:30am here. It took them a while longer than anticipated to really begin, because they had a hard time getting all her IV's/ CATH/ Arterial line in ( bruised all up and down both arms and legs), and had some trouble getting the halo and screws right- She has 6 screws in her head- but seven holes- one had to be repositioned. It was 10:30 before all that was done and they were ready to open her up. Dr. Samdani said her bones looked great and things couldn't have gone better despite, her vital tanking once and she did need blood. No complications!  She still has a breathing tube in (needs O2) a drain in her cervical spine- still draining a lot of blood, a cath to monitor output and many other IV lines and wires..... Thankfully she should stay under most of tonight- tomorrow will be a lot harder- trying to manage pain. She is on an antibiotic, sedative, heavy pain meds and more....her vitals are up and down, but there is a great staff here and they are doing a great job! Praying tonight is uneventful and that tomorrow as she starts to wake- we can help her manage the pain! Pray for her skin- she is getting real dry and bleeding- especially around her mouth and face. THANKS- GOODNIGHT!  

SURGERY UPDATE!

Dr. Samdani just came to speak with me about Wynter- he said it took them longer to get her started with all the intubating/ IV lines/ artery lines/ cath lines etc...and positioned with the halo- but that her bones looked good- they did put a little deeper screws in- but said that her neurologic function in her arms and legs look good so far. She did need blood, that they needed about 30 minutes to get her stable and then I could go down to her- I will post more as we go.  They have to wake her- hear her scream and see what her function (movement) is then she will be on heavy pain meds and valium to manage- but they have to wake her first... they said about 3 days in the ICU.....and we will see where we go from there....Ill write more and pics later! THANK YOU ALL FOR PRAYERS!!!

WYNTER says "SNOW BALL"!

Wynter, although not named for the season, LOVES the snow- I think it came just for her this morning! SHE was SO SO HAPPY to go play in it and get a snow ball- Thank you Lord for that little gift for her. IT is snowing VERY hard now- she is missing it- it is supposed to be gone long before she would be able to get out in it again. PLEASE PRAY NOW_ AS SHEIN IN SURGEY- FOR COMPLETE PROTECTION over her spinal cord/ nerves/ eyesight/ EVERY PART OF HER and for a perfect outcome! THANK YOU ALL!

Wynter got to see the snow before going back- IT MADE HER DAY!

Wynter  was SO happy to see and play in the snow for one minute before they took her back- PLEASE PRAY protection over her spinal cord/ nerves/ eyesight/ every part of her! GOD BLESS

PRE OP CHECK IN-

So, today we got all checked into the hospital- they let her play for about 2 hours, then went over all her medical history and medications. It took three of us to hold her down to get the IV in, only to find out an hour later we had to draw more blood from the other arm. After dinner they had me bathe her in a special antibacterial scrub, then gave her a strong laxative to clean her out. I braided her hair for the shave and the surgery. At about ten, they hooked her up to the IV fluid to keep her hydrated- as she cannot have anything else to eat or drink now- for who knows how long. They will come in and out all night- they will take us down tomorrow at 630 our time (530 texas time) to prep. for the OR. Then, we will all be praying for 8-9 hours as she will be in Gods hands, and the hands of the surgeons. I will post again, late tomorrow night. THANK YOU ALL FOR YOUR PRAYERS FOR HER TOMORROW!!!! 

Finally arrived: what a story!

Today has been an adventure to say the least- but God is providing every step of the way. We left at 3 am this morning and got to chicago fine- only to find out that our flight to Philadelphia had been canceled- they put us on several other flights to Philly- all those were then canceled. So God sent angels to help me run the airport back and forth- finally getting on a plane to Newark! The had to hold the plane for 20 minutes while they found our bag that we had checked :( Embarrassing, but thankful that the Lord had his hand on it. WE arrived in Newark- and tried to figure out how to get to Philly from there- the older couple said they would pay the $250+ taxi ride into Philly- WHAT a GOD sent- Then to top it off- one of Wynter's carry on bag was left in the taxi- the same family brought it back to the hotel just now. What a LONG day- but thank you all for your prayers. God is watching out for us! Ill try to post after Wynter's bed time each night to recap the day! Goodnight, and a big thank you and God bless to the Muller family!

Packing for Philly

Thank you to everyone who helped make the benefit tuesday night a HUGE success. Thank you Stephanie, Laurie, New Church, Home Depot, Mattress Firm, Discount tire, Midas, All things kids, and everyone who volunteered, and gave to the silent auction, Fire dept. pipes and drums....and so many more!  You are all amazing. Wynter and our family are so blessed by all your support for her and us during this time. 

I will post her progress here so you all can keep up with how she is doing. Thank you all for your prayers- we take off before the sun comes up on Wednesday!